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Human wrongs
As a person affected with HIV I sat and watched the Red Nose Day programme and saw the devastation of the virus in Africa. I was touched by a series of short films, especially about a young man named David and his mother Alitena who sat and watched her son die and could not do a thing. David eventually died. At the end of the film the caption read ‘he was too poor to live’.
I myself am facing deportation and know too well I face a similar fate. Who knows, next Red Nose Day I might be one of the statistics. What will my caption read?
My question is why are people campaigning so hard to eradicate the virus in one part of the world, while people who are here now and need help are being handcuffed and deported to their country to die? I think we who are here and need help are human too and need the same consideration as those you try to raise millions to help. Sending us home to die is a crime against humanity and we need your help and compassion. Please give us a chance.
RM, London

HIV in Britain: the reality
When I was diagnosed with HIV 12 months ago I was living with my partner and four children. At the time I gave her the chance to leave but she said we would sort things out together. But by December things were going wrong and by Xmas I was sat in an empty flat with nothing. Since then she has stopped me seeing my children because I have HIV, though she uses other petty excuses with her solicitor. I am now getting death threats from her new boyfriend and I am now hiding out at a friend’s house. I have never been so frightened and lonely. I have been left with nothing and have contemplated suicide. My solicitor is fighting my cause and the staff at the hospital have been very supportive, but my life is so empty without my kids.
Name and address supplied

Not just another STI
On 5 April, I read a short article in The Metro’s health section regarding STIs. I was disturbed to see they were classifying HIV equally with the other STIs. Besides there being no cure for HIV/Aids, unlike all other STIs, many people infected with the virus die. This is to say nothing of the impact of HIV on mental health, and the issue of disclosure. I fear this is another move by the government to make further cuts in public spending for HIV. As a homosexual man living with the virus for over 24 years, reading the article made me angry. People who are recently diagnosed do not understand the suffering of those who died of Aids, when the only drug available was morphine to ease the pain. I have lost numerous friends, and it is an awful experience to see somebody die of Aids.
Many young people are being infected because they do not practise safe sex. Others infect people unaware they are carriers of the virus. As a gay man, I get disgusted to think that some gay men might have unprotected sex in dark rooms, saunas or sex clubs. Unless the government take drastic measures, by in investing money for sex education in schools and promoting safe sex, I can foresee things getting worse.
HIV/Aids is the end of the word for many men and women. It’s not a question of only taking tablets, but of living with a life-threatening infection. It is not ‘OK’ to be positive, as some HIV people claim. It is the end of the world for many who live in developing countries, and either do not have access to or cannot afford the drugs. It is also the end of the world to many who cannot cope with the diagnosis or the strain of living with the virus.
I realise that there is more to life than having sex, so I have abstained from sexual intercourse, rare for an ‘active’ homosexual man. But I feel much more in touch with my inner feelings, spiritually richer, and saner. I astonish myself being able to cope with life without sex and feel ‘normal’. I feel clean and pure, and free from any STIs except HIV, which I classify as a chronic infection, not just a simple STI, because I live daily with the virus inside my body, and it’s NOT OK.
JB by email

Of mice and men
Regarding the article on mice with HIV: Aids is a uniquely human disease and can readily be studied in humans and their blood. Everything we know about HIV and Aids has been learnt from studying people with the disease, while many years of research in other species has produced nothing but disappointments. AIDSVAX, developed in chimpanzees, totally failed to protect 8,000 high-risk volunteers in clinical trials.
Extrapolating from other species is doomed to failure. The immune systems of different primate species are so diverse that data from one species does not even translate to another species, much less to humans. Using mice as model humans serves merely to deflect scientists from the real task of studying HIV in the only species it afflicts - human beings.
Kathy Archibald, Director, Europeans for Medical Progress

DLA defender
Yes, that's right, I'm just a work-shy benefits scrounger. Why do you continue to print letters like this? (The benefits of work, PN110) I would love to go back to work, back to delivery driving (10 years). The fact that all that sitting down gave me two deep vein thromboses and a lifetime of rat poison medication (warfarin) plus an interaction with my combo meaning a dose of 14mg daily (ask your doc if that's a lot!) What employer would be willing to give me a job when I cannot say in advance which days of the week I will be able to work (fatigue, nausea, "the runs", evil wind problems, total inability to concentrate for more than two hours at a time) and also the risk that if I cut myself I will probably bleed to death before the ambulance turns up. Perhaps I could be a politician.
Name and address supplied

Battling on
Following your report on funding cut-backs to HIV services, I'd just like to clarify that the Gay Men's Group at Lighthouse West London will not be affected by cuts this year. All our services are funded for the coming year, and we are working to secure funding for subsequent years. The cuts in funding do make things difficult for us, but we are doing what we can to minimise any disruption to services. We'll keep everyone using our services informed of any changes in the months ahead.
Adam Wilkinson, Regional Manager, Lighthouse West London

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Please include your address and phone number although these need not be published. Letters may be edited for length. Views expressed in letters are not necessary those of PN or the UKC




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