features - issue 76 PATIENT POWER MYTH OR REALITY?
positive nation

what I try and do is to empower people to act for themselves."
As a former chair of Brighton Body Positive, with

experience on both Sussex Aids Helpline and Open Door management committees, Paul is well placed to act for the local HIV community.
"I don't see my role as going round banging on tables and demanding better services. It's more about consultation, because we've already got one of the best HIV clinics in the country here.
"Brighton is a big regional centre. The biggest HIV group is still gay men - about 90 per cent - but we also have an increasing number of black Africans. The city acts as a magnet for young gays and it is estimated that the gay population is now over 30,000 which is one in ten of the local population."
Is his role a PR exercise or does he have any real say?

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"It's a volunteer post, but they do appear to take notice. One of the key things is to make my role work and get a degree of trust and respect. The sort of issues which come up are those about a basic standard of care: when to start treatments, referrals to the community nursing team or pharmacist for adherence support, how often patients get viral load tests and if resistance tests and drug monitoring are available.
"One of the big issues at the moment is access to other sexual health services. In some clinics it's just not offered but here in Brighton you don't have to ask. It's simply done within the HIV clinic.
"But I am worried about DoH plans to have Primary Care Trusts led by GPs running

the national HIV and Sexual Health Strategy. GPs are not famed for their

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