regulars - issue 87 caroline - what's good for you
Positive Nation
'Luxury of HYPOCHONDRIACS'

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That anxious look I get from loved ones is very hard to take, and all I want to do is reassure them that everything will be all right. Complicated isn’t it?!
When I was first diagnosed with HIV I felt very isolated. I had a gay friend with Aids but I did not tell him about my diagnosis as I didn’t want to worry him. He was very ill at the time and I felt my health was OK - the last thing I wanted to do was give him something else to cope with, so I looked after him and forgot about my own HIV.
The few friends I told at the time were shocked and very concerned about my health. Again, I did not want to worry them so I did not discuss what I was going through. I became aware that I could no longer whinge about any aches, pains, colds or any other ‘normal, everyday maladies’, because to them it represented something far more serious.
I coped for a while by just being in complete denial, but I began to feel isolated and longed to be able to speak freely about my situation, longed to meet other women in the same situation as myself.
I met other positive women for the first time at a support group. It made an enormous difference, the relief of being able to talk, knowing they were feeling the same things made me feel ‘normal’ for the first time in ages. I went on to running support groups and finding out, again and again, that no matter what the cultural differences might be, we all had basically the same problems, the main one being how to cope with our HIV status.
Then I started to realise that my (HIV negative) friends were treating me differently. I had always offered a shoulder to any one of them who needed it. But what I began to find was that even if I could see that they were going through a difficult time, they did not seem to want to talk to me about it. Over dinner one night a good girlfriend, having consumed rather too much alcohol, informed me that she did not feel she could confide her problems to me as she felt mine were so much bigger than hers...BINGO...I understood what was going on.
I tried to tell my friends that their problems were relevant and of course I still wanted to be confided in and

asked for friendly advice. Whenever I said this I was always greeted with `but I don’t want to

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caroline guinness
Caroline Guinness